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New pictures of my daughter
Well...
For those who don't know or have forgotten the story and older pics of my daughter, you can look here first, if you want.
So, december 23rd she finally came home to us, three days before her first birthday. She still needed Oxygen, and didn't eat, so was fed through a tube. We had a big oxygen concentrator (size of two miditowers next to each other, and LOUD, since it needs a compressor), oxygen tanks for when we leave the house (which we shouldn't, because of her weak immune system), and a pulse oximeter, the false alarms of which woke us several times each night.
On january 9th, after only a good two weeks with us, she needed no more additional oxygen, and breathed all by herself. The clinic could not believe it. By the end of january, she pulled her feeding sond out of her nose. Since then, she tries to eat (drink) all she needs herself, with varying degrees of success. We had to give her the feeding tube a few times (a cruel procedure, because she doesn't understand it - you shove it up her nose and push until the end reaches the stomach. She was of course mad at us the entire day when we had to do this).
She is now 67cm tall, and weighs ~4500g. Whenever we see a normal baby, we think "Ugh! How grossly fat!" *LOL
Twice a week, the physiotherapist comes, and twice a week a woman who erm... teaches her to use her senses and her body (dunno the word, german word would be "Frühförderung", which would translate to "early aid/support/stimulation"), and the doctor every two weeks.
Soooo... now, the pictures. These are from a few days ago, when she had the feeding tube, which she now doesn't need, hopefully forever.
AZ
P.S.: I see my post turned out to sound quite negative, but actually I'm feeling quite positive at the moment
For those who don't know or have forgotten the story and older pics of my daughter, you can look here first, if you want.
So, december 23rd she finally came home to us, three days before her first birthday. She still needed Oxygen, and didn't eat, so was fed through a tube. We had a big oxygen concentrator (size of two miditowers next to each other, and LOUD, since it needs a compressor), oxygen tanks for when we leave the house (which we shouldn't, because of her weak immune system), and a pulse oximeter, the false alarms of which woke us several times each night.
On january 9th, after only a good two weeks with us, she needed no more additional oxygen, and breathed all by herself. The clinic could not believe it. By the end of january, she pulled her feeding sond out of her nose. Since then, she tries to eat (drink) all she needs herself, with varying degrees of success. We had to give her the feeding tube a few times (a cruel procedure, because she doesn't understand it - you shove it up her nose and push until the end reaches the stomach. She was of course mad at us the entire day when we had to do this).
She is now 67cm tall, and weighs ~4500g. Whenever we see a normal baby, we think "Ugh! How grossly fat!" *LOL
Twice a week, the physiotherapist comes, and twice a week a woman who erm... teaches her to use her senses and her body (dunno the word, german word would be "Frühförderung", which would translate to "early aid/support/stimulation"), and the doctor every two weeks.
Soooo... now, the pictures. These are from a few days ago, when she had the feeding tube, which she now doesn't need, hopefully forever.
AZ
P.S.: I see my post turned out to sound quite negative, but actually I'm feeling quite positive at the moment
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